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This website is dedicated to my daughter Monica. She was born with a life-threatening neural tube defect, called an occipital encephalocele. This encephalocele contained a substantial portion of her brain. We were given a dire prognosis for our newborn. Two days after birth, on Christmas Eve, Monica underwent surgery. After 6 hours, we were given the news - Monica survived the brain surgery - our own Christmas miracle! Monica is now 22 years old. She had multiple disabilities (cortical blindness, cerebral palsy, developmental delays, and a seizure disorder.) Despite these disabilities, she is a healthy young woman who is rarely ill. She has tremendous motivation and continues to learn and enjoy life. Monica is a delight and inspiration. |
Family assistive resourcesCOARE - COARE specializes in quality products to enhance the daily living of people with disabilities. Owned and operated by people with disabilities. --- Disabled mobility access and assistive technology products from SabreCare - Disabled and mobility access products from SabreCare --- Essential Aids - Daily Living Aids for the UK - Essential aids supply mobility and living aids for the disabled, elderly or those caring for people with mobility difficulty --- Maine CITE - Maine CITE is a statewide project designed to help make assistive technology and universal design more available to Maine children and adults who have disabilities. --- Maryland Department of Disabilities - Maryland Technology Assistance Program --- MOBILIZR - Mobilizr, wheelchair users torso support system, back support with control, the MOBILIZR(tm) freedom, safety and security is truly a dream come true --- Online source for adaptive clothing, adult bibs, hospital gowns, and slipper socks - Personal Touch specializes in products such as hospital gowns, adaptive clothing, incontinence products, diabetic socks and other health care apparel. --- Standing Frames and Standers to assist with active standing; made by EasyStand - A standing frame or stander is assistive technology at its best. Quality rehab equipment created by Altimate Medical for healthy, active standing. ---
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